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Portable Oxygen Concentrator Resource Center

COPD Myths Debunked: Get the Facts About Living With COPD

Posted by Eden Coleman on Dec 16, 2024 11:59:08 AM
Eden Coleman
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Are You Aware Of How Gut Health Affects Your Breathing with COPD-2

COPD, or chronic obstructive pulmonary disease, affects millions of people worldwide, but it’s still widely misunderstood as you'll see after seeing these COPD myths that are being passed as fact.

Myths about COPD often create unnecessary fear, confusion, or even stigma, making it harder for you to seek the right care or support in order to live the highest quality of life possible with this progressive respiratory disease.

If you’re living with COPD or caring for someone who is, understanding the truth behind these myths is essential for effective management.

In this post, we’ll debunk common myths and misconceptions about COPD, offer you actionable tips, and share advice to help you or your loved one take control of managing COPD while enjoying and living a fulfilling life!

Myth #1: “Only Smokers Get COPD”

While smoking is the leading cause of COPD, it’s not the only factor contributing to the development of this chronic lung condition.

Non-smokers can also develop COPD due to several other significant factors that are often overlooked.

Let's now discuss how long-term exposure to irritants, air pollution, and even genetic factors can lead to the development of chronic obstructive pulmonary disease.

By at least being aware of these exposures that can lead to COPD, you can take actionable steps.

Long-Term Exposure to Irritants:

Prolonged exposure to various irritants in the environment can significantly increase your risk of developing COPD, so it's important to at least be aware so you can adjust accordingly.

This includes chemicals, dust, or fumes that are commonly found in certain workplaces such as factories, mines, farms, or warehouses.

If you currently work or have worked in these industries you may be inhaling harmful particles over extended periods, leading to inflammation and damage in your lungs.

For example, miners might be exposed to coal dust, while factory workers might inhale chemical fumes, both of which can contribute to the deterioration of lung function over time.

Compound this over years or even decades, your lung health can drastically deteriorate and possibly even lead to the development of COPD or another respiratory condition.

Air Pollution:

Do you live in an area with high levels of air pollution? Well this can also be a major risk factor for COPD.

Whether you live or work in or near urban environments with heavy traffic and industrial emissions, this can lead to chronic exposure to pollutants that damage your lung tissue.

Additionally, indoor exposure to biomass fuels, such as wood or coal used for cooking and heating, can be particularly harmful.

So if you have a wood burning fireplace, you may want to reconsider or keep a window open to prevent a buildup of smoke in your home.

In many developing regions, the use of these fuels in poorly ventilated spaces is common, leading to a buildup of smoke and harmful particles that can impair lung health over time.

This chronic exposure can gradually lead to the development of COPD, even if you have never smoked a day in your life.

Genetic Factors:

Did you know that genetic factors can also play a crucial role in the possibility of developing  COPD?

This is often a major factor that is overlooked by many, yet a portion of people diagnosed with COPD is the results of genetic factors.

Some inherit a genetic condition known as Alpha-1 antitrypsin deficiency, which significantly increases your risk of developing COPD.

Alpha-1 antitrypsin is a protein that helps protect your lungs from damage, and when your body has a deficiency in this protein, this can leave the lungs vulnerable to irritants and infections.

People with this genetic condition may develop COPD at a younger age and with less exposure to environmental risk factors compared to those without the deficiency.

Even if you have never smoked, your genetic predisposition makes you more susceptible to lung damage and as a result the development of COPD.

Here are some quick actionable tips you can start applying today to reduce your expose, staying on top of COPD screenings and of course staying smoke free!

Actionable Tips

  • Reduce Exposure: If you work or live in environments with dust, smoke, or fumes, wear a protective mask and ventilate spaces well. You should also consider adding an air purifier in your home to provide some assistance in providing a clean air home environment. 

  • Screen for Risk: This is especially important if you have a family history of COPD or Alpha-1 antitrypsin deficiency. You should ask your doctor about genetic testing and early lung function screenings to stay on top of this as much as possible as early as possible.

  • Stay Smoke-Free: While smoking isn’t the sole cause, avoiding both active and secondhand smoke remains the best way to protect your lungs.

Caregiver Suggestions:

If you are a caregiver for someone diagnosed with COPD, you should help identify and reduce environmental triggers at home, such as switching to air purifiers or avoiding the use of strong-smelling cleaners or candles to minimize air pollution in the home.

Another suggestion to keep indoor air quality as best as possible would be to open up the windows (on good air quality days only) to help refresh stagnant air.

But please make sure you check the air quality, as opening up the windows on a poor air quality day would just defeat the entire purpose and actually make the household air even worse.

Your goal needs to be creating the most COPD-friendly home as possible!

Myth #2: “People with COPD Should Avoid Exercise”

It’s understandable that if you have COPD you might fear exercise, as it can cause shortness of breath on top of already experiencing increased levels of fatigue.

However, avoiding physical activity can weaken your muscles and even your lungs over time, making symptoms worse. So by not exercising, you can actually allow the disease to progress faster and thus increasing the difficulty of related symptoms.

This is why you need to ensure you are getting regular, low-impact exercise that is beneficial and can even improve your breathing efficiency.

Here are some actionable tips to help you or a loved one start incorporating regular exercise into your routine when diagnosed with chronic obstructive pulmonary disease.

Start Small & Slow:

When you are first starting your exercise routine with COPD, it's crucial to start with light exercises that are manageable and not overwhelming as you don't want to get a sudden flare-up of symptoms because you are pushing yourself too hard.

This is why you should consider activities such as walking around your home or doing simple stretches that can be easily incorporated into your daily routine.

These activities not only help in maintaining your overall mobility but they also helpd to gradually increase and build your endurance.

As you become more comfortable and your strength increases, you can slowly increase the intensity and duration of your exercises.

But it's all about remaining consistent, stick with a schedule!

This gradual progression helps in avoiding overexertion and ensures that your body adapts to the new activity levels without causing undue stress or COPD symptom flare-ups.

Use Breathing Techniques

Breathing techniques are essential tools for managing COPD symptoms during exercise, so please do not overlook the importance of these when adding them to your overall COPD management routine!

Using the following breathing techniques can help in controlling breathlessness and improving oxygen intake, making physical activity more comfortable and effective.

Pursed-Lip Breathing Technique:

This technique involves inhaling slowly through your nose for about 2 seconds, allowing your lungs to fill with air.

Then, exhale gently through pursed lips, as if you are blowing out a candle, for about 4 seconds.

You should then repeat this 3-4 times.

This method helps in keeping your airways open longer, reducing the work of breathing and helping you to relax.

It's important that you practice this regularly to master this breathing technique so you can enjoy it's full benefits when you need it most!

This can be especially helpful when experiencing a COPD flare-up that's increasing your shortness of breath.

Diaphragmatic Breathing Technique:

Next up we will discuss diaphragmatic breathing, which is also known as belly breathing.

This breathing technique focuses on using your diaphragm efficiently.

To do this, you will first place one hand on your belly and the other on your chest.

Next, as you being to inhale deeply through your nose, let your belly rise, ensuring that your chest remains relatively still.

Now you should exhale slowly through pursed lips.

This encourages full oxygen exchange and strengthens the diaphragm, making breathing more effective and less laborious. 

Incorporate Low-Impact Chair Exercises:

For those who may find standing exercises challenging, chair exercises offer a fantastic alternative that still allows you to get in some physical activity.

Using things like chair yoga or seated leg lifts are excellent options that help maintain mobility and build strength without putting too much strain on your body.

Seated leg lifts are where you sit down on a chair, and then slowly raise one leg until it's level with the chair and then slowly raise it back down to the ground. Then you switch to the next leg and repeat.

Here are 5 poses to get started with chair yoga!

These exercises can be done in the comfort of your home and are particularly beneficial for improving flexibility and circulation, all while ensuring that you do not overexert yourself.

Tips For Caregivers:

As a caregiver, your role in encouraging physical activity is invaluable and maybe this is something you consider joining in on.

You can make exercise a more enjoyable and less daunting task by participating alongside the person you are caring for. This provides a level of support that is helpful but often overlooked in value.

Consider joining them for a short walk or engaging in a shared stretching session.

This not only provides motivation but also transforms exercise into a bonding activity, fostering a supportive environment that can significantly enhance the well-being of both you and the person you are caring for with COPD.

Myth #3: “COPD Is Just a Part of Aging”

Are you ready for the truth?

While it is true that aging can lead to a slight decline in lung function due to the natural wear and tear on the body over time, it is important to understand that chronic obstructive pulmonary disease (COPD) is not simply a normal consequence of getting older.

COPD is a serious and progressive chronic lung condition that results from significant lung damage and persistent inflammation, often caused by long-term exposure to harmful substances such as tobacco smoke, environmental pollutants, or occupational hazards.

So it's definitely more than just a simple part of aging...

COPD requires careful medical attention and a comprehensive management plan to address its symptoms and prevent further deterioration of lung health.

Let's now discuss some tips to taking an actionable approach to recognizing the presence of COPD instead of simply chalking them up to aging.

As leaving COPD undiagnosed and even untreated can worsen your management later on.

Recognize Symptoms:

It is crucial to be aware that symptoms such as a persistent cough, wheezing, frequent respiratory infections, or shortness of breath should not be dismissed as mere signs of aging.

These symptoms can indicate underlying issues that warrant medical evaluation.

If you or someone you know experiences these symptoms, especially if they persist for an extended period of time or experience them frequently.

The best way to know for sure is by consulting with a healthcare professional for a thorough assessment and diagnosis as there are tests they can run to see if you have COPD.

Pursue Early Intervention:

Early detection and diagnosis of COPD are vital for effective long-term management and can significantly slow the progression of the disease.

So if you are experiencing any of these symptoms frequently, or even have a history of COPD, you should make an appointment with your doctor to get tested.

Tests like pulmonary function tests, such as spirometry, are essential tools that provide an accurate diagnosis by measuring  your lung capacity and airflow.

Early intervention allows for you or a loved one to pursue treatment and make lifestyle modifications that can improve the management of COPD, while also enhancing overall quality of life.

Commit to a Care Plan:

To truly live the highest quality of life after being diagnosed with COPD, managing your COPD effectively involves a commitment to a care plan that includes medications, lifestyle adjustments, oxygen therapy, and pulmonary rehabilitation.

You will also need to reconsider some of the foods you may be eating, as an unhealthy diet can lead to weight gain worsening symptoms but also eating certain types of foods can also worsen your symptoms.

By using medications these can help control your symptoms and prevent exacerbations, while lifestyle changes such as quitting smoking, maintaining a healthy diet, and engaging in regular physical activity can support lung health.

Pulmonary rehabilitation programs offer structured exercise and education to improve breathing efficiency and overall well-being.

Additionally, pulmonary rehab provides a place that you can go to get support and connect with others that know exactly what you are going through. Which is really helpful for developing a sense of belonging and community.

Myth #4: “Once You’re Diagnosed with COPD, There’s Nothing You Can Do”

You will have to make many adjustments, but there are many things you can do about it!

After you receive a diagnosis of COPD, that can be overwhelming, but it is important to understand that it is not the end of the road and to not lose all hope because there are many actionable steps you can take.

But it's up to you to make that commitment to yourself!

Although COPD is a progressive respiratory disease, there are many strategies and interventions available that can help manage symptoms, slow the progression of the disease/flare-up of symptoms, and significantly enhance your quality of life.

YOU CAN absolutely live an active, social, and enjoyable life after receiving a COPD diagnosis, it just requires a few lifestyle adjustments amog other things.

Let's now discuss some of the actionable tips and things you can do after being diagnosed with chronic obstructive pulmonary disease (COPD).

Quit Smoking Immediately:

If you are a smoker, quitting is the most crucial step you can take to slow the progression of COPD.

As continuing to smoke, there's not much worse things you can do for your COPD diagnosis and overall declining lung health than to continue smoking.

Smoking cessation is the number one most effective way to prevent further damage to your lungs. But we understand how difficult quitting smoking can actually be!

If you are finding it difficult to quit, maybe consider seeking support through smoking cessation programs, counseling, or nicotine replacement therapies, which can provide the guidance and resources needed to successfully quit smoking.

Adopt Healthy Habits:

Practicing and embracing a healthy lifestyle can have a drastic impact on your lung health but equally as important you overall well-being!

Focus on eating a balanced diet rich in fruits, vegetables, lean proteins, and whole grains to provide your body with essential nutrients. You should involve your doctor when it comes to developing a healthy diet for your specific needs in relation to COPD but also your overall health needs.

If you are attending pulmonary rehab many times you can also discuss diet and exercise suggestions with professionals.

Staying hydrated is just as important, as it helps maintain optimal lung function but also helps to prevent mucus build up/makes it easier to break up mucus in your throat or airways.

One last healthy habit suggestion, is to manage your weight through regular physical activity and mindful eating can reduce the strain on your respiratory system and improve your energy levels.

Staying hydrated, active, and eating a healthy COPD-friendly diet are 3 healthy habits you simply cannot overlook any longer if you want to enjoy the highest quality of life with a progressive lung disease.

Explore Pulmonary Rehab:

Pulmonary rehabilitation programs are designed specifically for individuals with COPD and offer a comprehensive approach to managing this lung condition.

These programs are exceptional for receiving must know education on breathing techniques, exercise regimens tailored to your abilities, nutritional education, and strategies for coping with the challenges of living with COPD.

But one of the most overlooked yet most enjoyed benefits of pulmonary rehab is the ability to socialize with other like-minded people who can relate to what you're dealing with. While also providing you with first-hand tips from their experience, and maybe even helping you find your next friend or acquaintance. 

Participating in pulmonary rehab can enhance your breathing efficiency, increase your physical endurance, and empower you with the knowledge to better manage your COPD symptoms.

Speak with your doctor or healthcare professional about any local pulmonary rehab programs that you can join, if you don't have any in your area there are also virtual online options.

Use Portable Oxygen Concentrators & Other Assistive Devices:

Now of course this can vary from patient to patient, but depending on the severity of your COPD, using an assistive devices such as portable oxygen concentrators or mobility aids may be recommended to help you maintain an active and independent lifestyle.

You will only need to consider a portable oxygen concentrator if you're doctor determines low oxygen production following lung testing, and receiving a medical grade oxygen prescription. 

Where as using a mobility aid such as a walker can provide walking assistance while out and about, but still offering you the ability to stay mobile and active. 

These tools can provide the necessary support to ensure you can continue engaging in daily activities and hobbies that bring you joy, without being limited by breathlessness or fatigue.

Myth #5: “Oxygen Therapy Is Only for Severe Cases”

This is very important that we finally address this myth, as all types of people with varying levels of COPD could or could not require the use of supplemental medical grade oxygen therapy.

While the duration and even cause to use medical grade oxygen can vary depending on task can vary from person to person.

Despite common misconceptions that oxygen therapy (oxygen tanks, oxygen concentrators) is reserved solely for individuals in the advanced stages of COPD, it is actually a very useful treatment option that can be beneficial at various stages of the disease.

Medical grade oxygen therapy is prescribed based on specific oxygen saturation levels in the blood, which are determined through careful medical evaluation.

You can only receive medical grade oxygen through either a oxygen tank or oxygen concentrator but by law you must have a prescription from a doctor to use for treatment.

Even if you or a loved one are in the earlier stages of COPD, you can still experience significant improvements in your quality of life with the help of a portable oxygen machine or home oxygen concentrator.

By maintaining healthy oxygen levels, using a POC for example can boost energy levels, reduce shortness of breath, reduce feelings of fatigue, and enhance mental clarity. Helping you or a loved one to enjoy a better overall sense of well-being!

Now that you are aware about the truth of oxygen therapy and COPD, let's now discuss some actionable tips you can take when using oxygen therapy!

Monitor Your Oxygen Numbers:

It is crucial to regularly monitor your blood oxygen levels, this can be done quickly, easily and painlessly using a pulse oximeter, a simple device that provides quick and accurate readings.

A fingertip pulse oximeter simply slides over your index finger and the on-board screen will be able to give you an accurate reading of your current blood oxygen levels.

If your oxygen saturation levels consistently fall below 88%, it may indicate the need for supplemental oxygen to maintain optimal health and prevent complications.

Then once you start using your oxygen after noticing your blood oxygen levels dip, put the pulse oximeter back and your finger and you'll see your readings increase showing the true effects & benefits of your oxygen therapy.

Understand Your Options:

Modern advancements in oxygen therapy have led to the release of having to be dependent on bulky and cumbersome oxygen tanks.

And now with the development of portable oxygen concentrators (POCs), these FAA approved & intelligent oxygen devices are designed to be lightweight and discreet.

Use Oxygen Correctly:

No matter what, please ensure you are following your oxygen prescription exactly!

It is essential to adhere strictly to your doctor’s instructions regarding flow rates and usage duration.

Proper usage ensures that you receive the right amount of oxygen to meet your body’s needs depending on the activity being done, helping to manage symptoms effectively and improve your overall health.

Myth #6: “Medications for COPD Are Addictive or Harmful”

This is a dangerous blanket statement, and we're here to address this COPD medication myth once and for all!

Medications prescribed for COPD, which can be things like bronchodilators and corticosteroids, are not addictive when used as directed by a healthcare professional.

This is why you should always speak with a doctor before starting or considering any medication.

These medications are essential components of COPD management and play a critical role in maintaining lung function and improving quality of life, especially when used as directed and in combination with other treatments when instructed.

Bronchodilators work by relaxing the muscles around the airways, which helps to open them up and make breathing easier.

This can lead to immediate relief from symptoms like shortness of breath and wheezing, so you may find this especially helpful to have when experiencing a flare-up aka the worsening of your COPD related symptoms typically shortness of breath.

Corticosteroids, on the other hand, help to reduce inflammation in your airways, preventing flare-ups and exacerbations that can lead to further lung damage.

Actionable Tips:

  • Take Medications Regularly & as Prescribed: It is crucial to adhere to your prescribed medication schedule. 

  • Ask About Side Effects: If you have concerns about the long-term use of COPD medications, it is important to have an open discussion with your doctor. They of course can recommend alternatives to any medications you may have an issue with.

Tips For Caregivers:

As a caregiver, you play a supportive role by setting reminders for medication times and assisting with the organization of pillboxes, appointment schedules or inhaler schedules to name a few of things you help with.

This ensures that your friend or loved one that you are caring for remains consistent with their medication regimen as prescribed by their doctor.

Your involvement can help alleviate the stress of managing a complex medication schedule, being there as a helpful ear to listen or provide advice, and contribute to better health outcomes.

Myth #7: “People with COPD Can’t Travel or Live Active Lives”

Contrary to the misconception that COPD confines you to a sedentary lifestyle, with careful planning and the right resources, if you're living with COPD you can indeed enjoy travel and maintain an active lifestyle outside of your house!

The key to achieving this lies in thorough preparation.

Here are some steps you can take to travel and live an active life with COPD!

Plan Ahead:

Before embarking on any trip, it is essential to conduct thorough research on potential destinations and accommodations.

You should Look for places that offer easy accessibility and have good air quality, as these factors can significantly impact your comfort and health.

Make a checklist of essential items to bring along, including all necessary medications (plus a few extras to account for any unexpected delays), a doctor’s note detailing your condition and treatment plan, and a FAA approved portable oxygen concentrator (if you're flying) if required.

If you are bringing a portable oxygen unit, you should ensure you have 150% of flight time in battery life to stay compliant with FAA regulations, so you should bring enough batteries to meet that requirement and maybe bring an extra one of top of that!

We'd also recommend bringing along your AC/DC supplies so you can charge your unit in your hotel or in your vehicle, and if you have one toss in an external battery charger to streamline the charging of multiple batteries.

This preparation ensures that you have everything you need to manage your COPD effectively while away from home.

Monitor Air Quality Before Heading Out:

Utilize technology to your advantage by using websites or apps like AirNow.gov, these provide real-time updates on air quality for your exact area using your zip code or phones location data.

So if you're planning some time outside during your travels, don't forget to double check that air quality to prevent having to experience a low air quality day and the impact it can have on your COPD related symptoms and overall ability to manage them.

While not to mention, helping you avoid excessive and unnecessary exposure to pollutants and allergens.

Take Breaks:

When planning your itinerary, be sure to schedule regular downtime between activities, or if need be maybe think about getting a walker, rollator, or even wheelchair if you are having any mobility issues. Especially if you are ever planning on doing something that requires extensive walking or standing up.

These mobility enhancing products allow you to conserve energy and avoid overexertion, which can lead to increased breathlessness and fatigue.

By simply pacing yourself and even adding rest periods during activities, you can enjoy your travels without compromising your health.

Suggestions For Caregivers:

As a caregiver, your role in supporting a loved one with COPD during travel is crucial and will be even more appreciated than it already is after a successful completion of the trip.

You should help with assist in planning itineraries that strike a balance between activity and rest, ensuring that the person you are caring for does not feel overwhelmed yet still feels like they are actively enjoying their travels.

Offer reassurance and encouragement throughout the journey, helping to alleviate any anxiety they may have about traveling with COPD.

Final Thoughts

Understanding and debunking myths about COPD is crucial for enhancing both physical and emotional well-being.

Misconceptions can often lead to unnecessary fear and stigma, which may prevent you or a loved one from seeking the care and support they need.

By learning the truth about COPD, you empower yourself with the knowledge to take actionable steps that can significantly improve your quality of life.

This includes managing symptoms more effectively, pursuing treatment sooner, staying active, eating healthy COPD friendly foods and finding joy in everyday activities despite the challenges posed by the condition.

Whether you’re a patient or a caregiver, it’s important to remember that COPD is just one aspect of life and does not define who you are.

Embrace the journey of staying informed and educated about this progressive respiratory condition, as this knowledge is a powerful tool in your overall treatment and management routine.

Work closely with your doctors & healthcare providers to develop a personalized care plan that addresses your unique needs and circumstances. And make sure you stick to it and remain consistent as best you can day in and day out!

Never hesitate to ask for support from medical professionals, support groups, or loved ones, as a strong support network can make a significant difference in your journey with COPD.

We encourage you to share this post with someone who might benefit from understanding the realities of COPD.

By spreading awareness, you contribute to a more informed and compassionate community.

Let us know in the comments which COPD myth surprised you the most, and feel free to share your experiences or tips for managing the condition.

Together, we can break down barriers and foster a supportive environment for everyone affected by COPD.

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