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Portable Oxygen Concentrator Resource Center

Understanding the Emotional Side of Chronic Lung Conditions: Strategies for Resilience & Support

Posted by Eden Coleman on Nov 14, 2024 7:40:44 AM
Eden Coleman
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Are You Aware Of How Gut Health Affects Your Breathing with COPD-1

Living with a chronic lung condition like COPD, asthma, cystic fibrosis, or Alpha-1 can feel overwhelming in more than one way.

Many of you reading this right now know about the physical challenges—breathing issues, managing medications, and medical devices.

But what often goes unnoticed is the emotional toll.

Fear, loneliness, frustration, and anxiety can affect anyone dealing with a long-term illness, especially those that impact how you breathe and live each day.

In today's blog post, we’re going to explore what these emotional struggles look like, why they matter, and, most importantly, some practical ways to help you manage them so you can start to feel better.

Because leaving these left untreated will just allow those feeling to hang around, and possibly get worse overtime.

Whether you’re dealing with these issues yourself or you’re supporting a loved one, there’s a way forward, and we're going to breakdown some actionable steps you can take starting today, Let’s get started!

The Emotional Impact of Chronic Lung Conditions

Fear & Anxiety About Your Future

Living with a lung condition often brings worries about the future.

Questions like “Will my symptoms get worse?” or “How much longer will I be able to keep up with my daily routine?” are common.

This can lead to anxiety and sometimes even a feeling of helplessness.

Knowing that you’re not alone and that others share these worries can be a big relief, this is why we highly recommend if possible for you to find a local COPD support group in your area, or even find one online that you can attend.

Having that sense of community, and knowing you aren't going through all this alone, especially if you don't have friends or family close by this is a great way to get support and to be social.

Sitting inside your house all alone, constantly thinking about how difficult it is to breathe, or how you can't do certain things like you once could will drastically impact your fear and anxiety.

Feeling Isolated and Alone

Having a lung condition can mean more time spent at home, which sometimes leads to feeling isolated.

Going out can feel risky or uncomfortable, especially if you need to bring oxygen along or limit your activities. But with a portable oxygen concentrator, you can take a sigh of relief knowing your oxygen needs are covered for the duration of your battery. And if you ever begin to run low, you can simply plug it into a power supply to recharge.

However, if you don't have the freedom enhancing benefits of a portable oxygen concentrator, and are using cumbersome and limiting oxygen tanks. This can make you feel even more cut off from friends and family, which affects your mental health.

Frustration & Loss of Independence

For many, it’s very frustrating to rely on others or on medical devices to do things that used to be easy.

This feeling of losing control can impact self-esteem and bring a sense of loss. Sometimes, small tasks feel impossible, which can be discouraging. 

But you need to focus on making today the best you can, instead of focusing on what was lost from yesterday.

Why Mental Health Matters in COPD Management

The way you feel emotionally can actually impact your physical health, too.

Studies show that stress and anxiety can make physical symptoms worse, especially with chronic conditions like COPD or asthma.

Being anxious or sad can affect your breathing, make you feel more tired, and make it harder to stick to treatment routines.

With COPD you already have an incresingly difficult time with breathing, so don't you want to do everything you can within your power to avoid your COPD symptoms from getting worse due to declining mental health?

Because on the flip side, when your mental health improves, you can often feel stronger, more motivated, and able to handle your symptoms better.

Actionable Strategies You Can Use to Cope with Emotional Challenges

1. Mindfulness & Meditation Practices

Simple breathing exercises or mindfulness practices can help calm your mind and body.

Try sitting quietly for a few minutes each day, focusing on your breathing.

Let thoughts come and go without holding onto them. Apps like Headspace or Calm offer easy-to-follow mindfulness exercises, which can help reduce anxiety and improve focus.

Another effective way to reduce your stress and anxiety is to focus on gratitude, versus constantly thinking about everything you've lost. Even with a respiratory disease like COPD, there are many things you can be grateful for. 

2. Setting Realistic Goals and Celebrating Small Wins

Set small goals that feel doable, and even if there are days when you can't complete those goals you need to give yourself a break and be kind to yourself.

For example, you might aim to walk around the house or spend 10 minutes outside each day performing light exercise activities.

Each step forward counts, no matter how small it may seem! Even minor victories, like sticking to your exercise routine or spending quality time with a friend, are worth celebrating and can all be beneficial for helping to manage the emotional symptoms many experience with COPD.

3. Developing a Routine

Having a daily routine can bring stability and comfort, especially when life feels unpredictable.

Include time for rest so you are getting 7-8  hours of sleep per day, light activity to stay active, stick with COPD & respiratory friendly meals, and of course scheduling in time for relaxation.

A routine can make each day feel more manageable and help you find comfort in familiar habits.

It's just like how you would have a work routine, a school routine, so having a routine to help cope and manage your emotional as well as physical symptoms of COPD can work wonders!

4. Journaling to Express Your Emotions

Writing down your thoughts can help you process your feelings.

Try jotting down what made you feel good each day or anything you want to work on. Again this would be another great place to journal things you are grateful for, allowing your mind to focus on gratitude versus getting stressed out about everything you don't have or have lost.

Keeping a journal is also a great way to look back and see progress over time, which can be incredibly motivating.

The Critical Role of a Support System

Family and Friends

It’s essential to stay connected with those close to you. Tell them how you’re feeling and let them know what you need.

People often want to help but don’t know how unless you tell them.

Honest communication helps build a stronger bond and keeps misunderstandings to a minimum.

This could be things like meeting up for lunch, having friends or family members join you for your daily exercise outside, or even hoping on a video chat if you don't live nearby your family.

Finding Community Support

There are many support groups, both in-person and online, that focus on conditions like COPD.

Talking to people who know exactly what you’re going through can be a huge relief.

The American Lung Association and other organizations have resources to help you find support groups that fit your needs.

You could find a local support group, or if nothing is nearby you could always look to join a virtual support group online.

Working with Healthcare Providers for Mental Health Support

Your healthcare team can be a big help in managing mental health, too. They may refer you to a counselor or support group if they feel you’d benefit.

Keep in mind that you should never hesitate to talk to them about how you’re feeling emotionally—they’re there to support your whole health, not just your physical symptoms of COPD.

Practical Tips for Managing Stress and Staying Positive

Practice Gratitude

A gratitude journal can help you focus on what’s going well, even on tough days. Choose to focus on the positives, instead of solely focusing on the negatives.

Each day, write down one thing you’re thankful for, no matter how small. This habit can shift your focus from challenges to positives.

Find Low-Energy Hobbies

When you’re feeling low-energy, finding enjoyable activities can lift your mood and can help to distract your mind.

Try hobbies that don’t require too much physical effort, like painting, reading, watching your favorite TV show, calling a friend or family member, listening to music, or even going outside your house and birdwatching.

Create a Relaxing Home Environment

Surround yourself with calming colors, soft lighting, or plants to create a relaxing atmosphere.

A calm space can help reduce stress and make you feel more at ease at home.

Lean into Humor

A good laugh can be an instant mood booster!

Watching a funny show, talking to a friend who makes you laugh, or reading a lighthearted book can help lift your spirits.

Laughter is known to reduce stress and make people feel more positive.

Recognizing When to Seek Professional Help

Sometimes, emotional challenges can be overwhelming. If feelings of sadness, anxiety, or isolation are constant and affecting your day-to-day life, it may be time to seek extra help.

Talk to a healthcare provider if you notice symptoms like:

  • Persistent sadness or irritability
  • Loss of interest in activities you used to enjoy
  • Changes in sleep or appetite

Mental health support might include counseling, therapy, or medication, and these can be effective tools for managing emotional struggles.

Conclusion

Coping with the emotional impact of COPD or another chronic lung condition is a journey and something that you will need to prioritize.

As ignoring these symptoms will often lead to them worsening, causing your COPD related symptoms to worsen along with them.

Remember, you don’t have to face these challenges alone.

By building a strong support system, setting small goals, practicing gratitude, and taking time to connect with others, you can make each day feel a little brighter.

Keep reminding yourself that it’s okay to reach out for help—your emotional well-being is a crucial part of living well with COPD.

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